friday clinic...

Camryn was scheduled to go to clinic on Tuesday, but because of her potential mouth sores her doctors wanted to see her earlier. So off Jason and Camryn went this morning to Friday clinic. We are so very thankful that Camryn's doctors are really on top of things and there really is not a "let's wait and see attitude" about stuff.

Camryn got to see her usual favorites and was very happy about that! As always they take sweet care of our girl and we are so very thankful!

Dr.M concluded that the mouth sores are not GVH related, but rather caused by Camryn biting her cheeks. In classic Camryn fashion as Dr.M was talking he asked Camryn if she bites her cheeks and she said "yes." Love that we have been trying to solve this mystery of mouth sores and Dr.M solves it in no time, guess Camryn really trusts him. :) Anyways, Dr.M has been thrilled with Camryn's progress and decided to discontinue her steroids...yes, you read that right...

Camryn Lee is steroid FREE!

After many months of steroids, the endurance of the not so nice side-effects; she's done. We are so excited! We have already seen the side-effects ease...Camryn has lost thirteen pounds from her highest weight during her steroid months. Believe me we are astonished thinking about where those thirteen pounds were on Camryn's small frame. We are beginning to see more and more of our little girl and to say it is a blessing is a gross understatement. It is quite simply a miracle...

We are completely aware that at any moment the road can change, unknown bumps can come; they already have. But, we are so thankful for where Camryn is today. She's passed another benchmark on this journey...there are many more to go, but for now this is a big one! And you know it's a little piece of good news in February...

Dr.M also said that Camryn does not need to go back to clinic until March...yes, it is an entire month away and at that point they will begin to discuss a cyclosporin wean. Which means that we will begin to see the slow wean of Camryn's anti-rejection medicine which is another big benchmark. Dr.M said that the big surge of GVH Camryn had earlier with the body rash and such was such a good thing...it was a lot without becoming chronic which is almost the best for Camryn. So we are so thankful...

Honestly, we could not ask for more...in light of all the hard memories of February we'll be thankful that for today Camryn has passed a benchmark and she's doing great!

We are thankful for the encouragement of Dr.M...he has walked some very dark days with us, but we are so thankful that he is able to bring us some hopeful days too. Thankful that he continues to pray for our little girl and he believes that the Lord isn't done with Camryn's story yet...

Sunday marks four years of this journey...

Not sure what to think of all that...but for today, we'll be thankful for the end of one of our nemesis and celebrate a bridge crossed!