Saturday, November 27, 2010

the week in review...

Our holiday week has been wonderful...here's the week in review.

* On Monday Jason, Camryn, Wyatt and Jason's mom headed to the kids favorite park. The kids love this park as they call it their adventure park. There are rocks to climb, a little creek running through, bridges to cross and fun to be had. Jason had the week off so he and the kids went on an adventure and decided to invite Grandma to come along. They picked up Grandma, got some lunch and had a picnic at the park...from what I hear it was a wonderful day! Camryn and Wyatt could go on adventures all day...they have such amazing imaginations...I'm happy they had an adventure, only wish I could have joined them!

* Tuesday Camryn headed to clinic with Daddy...it had been five weeks since her last appointment. Unfortunately they ran into a lot of traffic so they got to clinic a bit late, so it took longer than normal...but, all went well. Camryn saw Dr.M who was so pleased with her progress, she is doing wonderfully, truly she is. Camryn had a bit of a runny nose and a little cough so they decided to keep her meds the same, but in two weeks we are to lower (wean) her tacrolimus a bit! Yay, the wean continues! Camryn got to see all her usual friends which is always fun for her. We got her lab sheet later that day and it was fabulous! Honestly we have not seen her numbers this high in about two years...
White count - 8.46
Red count - 3.97
Hemoglobin - 12.1
Platelets - 297,000
ANC - 4000
Now, those numbers may not mean a whole lot to you, but to me they brought tears. I was so excited...progress! So incredibly thankful for good, strong numbers!

* Wednesday I joined Jason and the kids on vacation and we headed to the zoo. The zoo was on the kids list of places they wanted to visit...and it did not disappoint! We had a great day together as a family, the zoo wasn't too crowded and the weather was really beautiful.

The stinky animals were getting to Wyatt...



Love these two...thankful for their little lives.









* Thursday we headed to my parents house for lunch. My mom made a yummy, yummy lunch full of all the traditional Thanksgiving food. And yes, those of you that know me well know that Thanksgiving is not my favorite as I really don't like turkey. :) In spite of the turkey, we had a great time hanging out with my parents. So thankful for them! We then headed to Jason's family for Thanksgiving...we had lots more yummy food and spent time with family. It was a wonderful day of family, cousins, playing, football and food. We have much to be thankful for and daily I am reminded of the most incredible blessings of my children. No, the story has not gone like I would have written it, but I am thankful for the many things that have been given. Thankful to the Lord for what he has given to us...simply thankful.

Cute Cousins...



Camryn & Riley playing dance team...



Reading books with Grandpa...



* Friday a birthday party for our friends Jonas and Aria...we had a blast. Camryn and Wyatt absolutely loved Scooter's Jungle, we had never been before and they had a blast! We came home and decorated for Christmas...it was fun! Camryn and Wyatt are so much more into the decor of Christmas, the tree and all the fun! The house now looks like Christmas and we are ready to enjoy the holiday season. That evening we went to Village's play-off football game...it was cold, but an awesome game!

All in all it's been a very full week and so much fun! We are thoroughly enjoying the little tastes of life that seem to be returning. So many things are becoming more and more normal and it's refreshing...

Incredibly thankful...

Saturday, November 20, 2010

operation christmas child...

In the spirit of the holiday season we decided to participate in Operation Christmas Child...

We headed to the 99 cent store, got a bunch of fun stuff, packed the boxes, and enjoyed the spirit of giving to someone else.















We had lots of fun. And the best part? We were able to get bar code stickers to track our boxes to see where in the world they end up! Cool, huh? We think so!

Wednesday, November 17, 2010

remembering...

Four year ago today we brought our little survivor home from her first transplant to see her eight week old brother...now they are six and four and I am wondering where did the time go?

This very questions has occupied my mind today. I can remember the day like it was just yesterday...Camryn in her little black Crocs, Mickey Mouse mask, princess t-shirt, little black pants running out the doors of the old hospital at UCLA. I remember the day well...

I remember being scared to death to take Camryn home and yet so excited to take Camryn home. I had no idea just how hard isolated life would be, how could I? And I didn't know what it would be like to have my two kids under one roof again...after all we had less than a month of our two kids home together before Camryn went in to the hospital. I remember the day we were admitted and I had no idea what to expect and the day we came home still not knowing what to expect. I remember thinking oh how I wish this was a dream...

But it wasn't. We had a very sick little girl who was just two-and-a-half and a little boy who was just born...I remember tears and tears. Trying desperately to understand why and battling to balance the emotions of a new life and a life that felt as though it could slip away at any moment.

Even though it was four years ago, I can take myself back there in no time at all...

"In this life, many of your questions will simply not have answers. But through it all, God himself will never change. This is why our faith must rest on his identity and not necessarily his activity."
~ Pete Wilson

Over the course of the moments, days, and years I have literally cried my way through asking question after question...demanding answers that I have yet to receive. And the above quote jumped off the page, because it is so true.

My one answer that has consistently come is that He will not change. He is the same yesterday, today, and forever...and my heart can rest there. Period.

I have to constantly remember this...because if I'm honest sometimes my heart forgets. It forgets who it loves most, it forgets what great things that love has done, and it neglects that love...but, yet that love pursues me, remembers me, and knows me.

"If you place your faith in what God does, you'd better prepare yourself for frustration and disappointment because you're never going to figure out God's ways this side of heaven. That's because God is God! As he told the prophet Isaiah...

Just as the heavens are higher than the earth,
so are my ways higher than your ways
and my thoughts higher than your thoughts. (Isa. 55:9)

Why are you going through what you're going through? I don't know.
Is what you're doing God's will for your life? I don't know.
Will it be over soon? I don't know.
You may not know either. You may never know...

...And who is he?
He is the God who is faithful. The God who keeps his promises. The God who is with us every moment and is in the process of working all things for good. Even in our whiplash moments. Even when the bottom seems to be falling out and bad news sets our heads to spinning.
Even in the midst of a Plan B, you really have only one task, one calling.
And that is to do what you would do if you were confident God was with you."
~ Pete Wilson

I have to remember, because remembering four years ago helps the my heart today.

Sunday, November 14, 2010

thankful...

It's that time of year, isn't it...a time to really think about what we are thankful for. I have always found that to be a little weird, I mean really shouldn't we give thanks always...

Some things have been mulling through my mind and heart about which I am truly thankful...and to my surprise some of the things that keep coming to mind are those
which caused much pain. Here's a few of the things...I think I'll post more here and there over the coming weeks.

Perspective

I would have never chosen this journey, ever. But, I am thankful for what has been gained in the midst of great loss. I now see through different eyes and feel with a different heart. Before the world fell apart, I had compassion, empathy...but, I myself had never met face to face with the bottom of the pit. Once there the world looks incredibly different, it is much more real and it is incredibly hard sometimes to find the strength to believe. Yet, there has been a gaining of perspective that the world is much bigger than my little corner of it...there are many children and families hurting, fighting, and hoping...there is a world that I had never known and now it is a world I cannot, will not ever forget.

Waiting


I am not a patient person...my mom blames it on my Welch roots, whoever is to blame, it is a fact I do not like waiting. Throughout the years we have had to wait and in waiting much has been gained. I honestly can say that through those days of waiting my reliance on my Savior strengthened...knowing that he is the only one that can carry me, us through. We have had to wait on test results, surgeries, lab slips, medicines, and doctors. We have waited in waiting rooms, hospital rooms, recovery rooms, lab cubicles, procedure centers, and own our living room. Some days we have waited well...some not so much. And yet now we are waiting for life so to speak...waiting for the green light to our big life...waiting for the world of "normal" school...waiting for friendships and social life. But, I am thankful that in as much as I don't wait well, I wait better. Waiting still drives me nuts, but now I am more understanding and less in a hurry. If there has been any gain it is that my heart isn't in such a rush. I live my life in the hands of my Savior, who has all the time in the world.

Students


There is a group that I spend a lot of time with, my students. And in that group are the ones that have moved on, but for a period of time they spent a lot of time with me as well. I love these kids. They give to my heart something that I cherish...encouragement, realness, and hope. There are the ones that Camryn and Wyatt have come to know and love...and for those students I am so thankful. They make my job better for allowing my kids to be a part of their lives as well. Thanks to those kids who love my kids...it is a gift beyond compare. One that I experienced long ago when my dad was principal and I hung out at games and such with some high school kids, who I adored. And now, history is repeating itself...Thanks to all of you!

Missing

When one walks close to having to let go of your own daughter all the other times you have to let go hurt like crazy. This weekend I've been missing...my grandparents, my Aunt Frankie, my nephews Blake & Ethan, a beautiful young lady Courtney. All of them hold a place in my heart and I miss them. I miss two of the greatest people in my life, who some days I wish were here so I could talk to them, hear them and know that they are there for me. I miss you Grammy and Grandpa, thank you for all you mean to me. I miss probably one of the greatest woman my heart has ever known, my Aunt Frankie. This weekend I cried as I just miss her so...I hate that she was sick with the very disease Camryn fights. I miss her voice, I miss her cards and I miss her heart the most. Thankful for all she has given to me. I miss two little boys who left too soon, but left a mark on my heart that will never be erased. They taught me much, and left me thankful and yearning...thankful for our eternity and yearning for it to come quickly. Missing a young lady who four years ago today lost her fight with leukemia...never met her, but her mother taught me much. Courtney was a few doors down from Camryn and my heart will always carry with me a young lady wearing a shirts stating that "Cancer Sucks", which it certainly does. Thankful that my life is richer for knowing them...thankful that I have learned to miss and long for the day of seeing them again.

For all these things I am thankful for the perspective of waiting for eternity, while missing and yearning...to live in the present and hope and believe that He is coming...

Come quickly Lord, come quickly.

Tuesday, November 9, 2010

seventeen...

This past Thursday marked 17 months since Camryn's bone marrow transplant...

Here's a little update:

* Camryn is still on her meds, her daily regime of 7 different meds. She is a champ and takes her meds like a pro, some days she gets a bit frustrated; but most of the time she does a super job!

* Her next clinic appointment is in two weeks. This has been our 5 weeks stretch without a doctor's visit and so far so good! Yay, Cam!

* Last year around this time was when Camryn hit a little bump in the road and got a fever...she was in the hospital for 3 days. Praying that she'll stay fever free this fall and we can quickly and easily get to the spring and out of cold and flu season.

* Overall, Camryn is doing fantastic...and really that is enough for today.

Thanks for your continued thoughts and prayers!

Thursday, November 4, 2010

unexpected...

Many things in life have been completely unexpected, some good, some not so good, and some down right bad. I have been beyond blessed by many things that I certainly have not deserved...but, even within that there have been many moments through out the past years that I have found myself standing on the edge of the unexpected...

Never did I ever imagine that my journey through motherhood would look quite like it has...did not expect to have a miscarriage, nor did I expect to spend my little girl's toddler years navigating through leukemia, nor did I expect to have my son donate for his sister not once, but twice.

No it has not looked like I expected...

I remember clearly holding my 21-month-old daughter and pleading with the Lord to make what was coming not come. I think in my heart of heart's I new on that day in February of 2006 that something was terribly wrong, did I think leukemia? No, but I knew that my life would never be what it was before, never. I remember riding in the ambulance watching Camryn sleep in her princess pajamas fighting hard not to be overcome with the nausea I was feeling from being carsick along with the dread, the huge knot that was developing in my stomach. Little did I know that knot would not be leaving, lessening yes, but leaving no. Fighting the tears, fighting the reality that in a instant was I expect had become so completely unexpected.

I remember Jason and I trying hard to navigate feeling thrilled that a new baby was coming our way, while trying to deal with the reality that our sweet little girl had cancer. I was asked this week by a student how did you do it? How did you get through that? I'm not gonna lie those nine months were some of the hardest in my life. I expected this pregnancy to be different and it was totally unexpected.

While walking through these months that have grown into years I clearly remember trying to find a way to make things what I expect them to be...and surprise, surprise it hasn't worked. Trying so hard to let go and accept what life has come to be.

And within these past couple months life has come to be not exactly how I expected it to be, but for the good.

Camryn again is doing really well in school, she has completely delighted her teacher and they have become fast friends. She is reading, working on her reading and writing workbook and doing math...she does really well and enjoys school very much. I was not sure how she would do with having to do home schooling again, especially since we really did not expect this. But, even within that Camryn is doing what she does best, making the most of a situation, even if it is no where near what she would like.

Wyatt has been slowly, but surely blossoming socially...many times Jason and I wonder if some of Wyatt shyness and social withdrawal has to do with his sister's life. We never expected life to be like this for Wyatt, but really it has been anything but normal...at times I wonder when all is said and done, when many years have past if Wyatt will be able to tells us what he remembers and knows of his first years of life. He really does not have too many friends, he has never been in a structured school type setting whether it be Sunday school or preschool...never expected that my little guy would not be acquainted with life like other kids his age.

But, these past couple months have been an unexpected gift...

As a family we have been able to participate more in school and church life. We have attended games, gone to events, and even made it to a service or two. In all of those things something unexpected has been developing...

Friendships.

This year at work we have some new administrators and it is really neat, because they are really neat people, but they have kids close to Camryn & Wyatt's age. Throughout going to games and such the kids have become friends and it has been a gift beyond compare for Camryn and Wyatt too. These kids are truly a gift from the Lord, really they have filled a void for Camryn and I am so thankful. Thankful for their very caring and concerned parents who are becoming friends. Wyatt was very shy at first, but it's taken him awhile to warm up and now he has. He is younger than the rest, but there is a little guy who has become someone Wyatt likes to play with. I am thankful...did not expect that these friendships would be such a blessing, but they have been and I could not be more grateful.

I joined choir to sing in the Christmas musical...now to clarify I am not the choir, singing type, really did it initially for my friends C & S and because I thought it would be a good way to be involved in church since I really cannot attend at the moment. When I started I sort of wanted to give up...I cannot read music and honestly I am SO not musically inclined. But, some of the friendships that were developing along the way kept me coming. And now only about a month away from the musical I have found some great people, who make me smile and who I enjoy very much. I enjoy laughing at myself and my inability to read music, but I enjoy the other people...whether it is D who is my buddy, or M who just makes me smile, or L who is the best person to stand by ever, or S who is a dear treasure to me, or C my director who patiently allows me to sing (or as I like to call it make a joyful noise). Choir has been a growing experience I did not expect.

Life these few months has been an unexpected journey...

I have met students who I have come to cherish...who daily are investing in me and I love it. I have found that I really do love my job and I really do love what the Lord has called me too.

We are making it through...I know that at any moment life could fall beneath me, the ground could give way, but isn't that life? A journey in the unexpected while living in our expectations? Expecting somehow that the Lord will save us...save us from the moments of despair...

I'm reading an incredible book called Plan B...reading through it slowly, very slowly to let some of the thoughts sink in, really sink in.

You've been there, right? Not necessarily in the bottom of a pit, but you know that "why me" feeling. You've been lying in bed late at night, staring at the ceiling, unable to sleep and silently praying, Why? Why me, God? Why now?


I cannot tell you the number of nights I lay crying in a hospital, wrestling with these very questions...

You may also have been in that lonely place where you've screamed, "God, where are you? Why aren't you listening? Why have you abandoned me?"


Have you ever been there? I think for period of my life I was in this place time and time again...

When life isn't turning out the way we had hoped, we almost always default to the feeling as if God has abandoned us. We may not life to admit that. It makes us feel petty and immature. But it's the truth, isn't it? Don't we tend to wrap our own plans, our dreams, and our desires around our concept of God's presence so that when our plans and dreams and desires are frustrated we assume that God is just not there anymore? When our plans, dreams, and desires crumble, our faith tends to take a hit. We instantly feel let down and distant from our heavenly Father.

And yet the truth is that God is most powerfully present even when he seems most apparently absent. He's always working. Even when we can't see him or feel him, all circumstantial evidence of our lives will testify to his presence.

That is, if we're willing to pay attention.
~ quotes from Plan B by Pete Wilson

I am trying to pay attention...knowing that He will carry me through the unexpected.

Monday, November 1, 2010

jessie & woody...

You've got a friend in me...



Jessie the Yodeling Cowgirl...



Love, Love, Love these faces!



Woody, Grandma & Jessie...



Look who we ran into...another Woody and Jessie!



For a treat...ice cream cones! Yep, they loved every second!



Jessie, Jessie, Tinkerbell and Woody...quite a gang



Trick or Treat...



Love this little gang of friends...



Me and my little guy...



Four Mikels...



Grandma, Jessie, Woody & Papa



We had a very special Halloween...so different than a year ago. As Camryn describes she had "puffy cheeks" last year...but, this year she was so excited to look so much more herself. :) We enjoyed Trunk or Treat at church and then on to our friends the Aust's for a little Halloween fun. We had a great evening...SO thankful for all the fun and especially for Jessie & Woody. :)