patience

Today had been a day of much anticipation...Camryn was supposed to go into surgery for her line at 3pm and then start her arsenic treatment, well...remember that we are now expecting the unexpected? That was today.

Camryn did not get into surgery until 7pm...yes, four hours later. An emergency came up and they needed to bump Camryn...which we understand as adults, but try explaining that to a 4 year old who had not eaten anything until 7:00 this morning. She was cranky and her IVs were not drawing blood very well and it seemed as if things were just getting worse and worse. I won't lie...the tears seemed to come today. Just seeing Camryn uncomfortable, in pain, cranky, angry and about everything other emotion a 4 year old with leukemia can have...nearly broken me in two. I'm not sure how to do this again...I mean my mind does, but my heart is finding it harder and harder.

After waiting 2 hours in the surgery waiting room...they called and we went to see Camryn in recovery. We waited with her in recovery for an hour and finally we were able to head back upstairs to our room to get settled back in...Camryn is doing well now. Still cranky and just upset...but, her central line is placed and that means no more pokes! Praise the Lord, one hurdle crossed.

Since her surgery was so late she will not be starting her arsenic tonight and will start it tomorrow hopefully in the morning...that bumps us back a day, but we are hopeful that all will go well and we will still be on track for doing 5 days in patient and the rest as an out patient.

Camryn also had a lumbar puncture while in surgery to check for leukemia cells in her spinal fluid...thankfully, no leukemia cells were found.

Thank for the many prayers and comments people literally all over the world have left us...we thank you. We thank you for lifting our little girl up in prayer. We know there is no greater act than to lift her up to the Father.

Jason and I are doing well...learning how to navigate these feelings and such again. Honestly, it is sort of like riding a bike...you never forget. You never forget the little tricks that you learn...the little things that novice parents would never know except from experience. I guess there is a blessing hiding in there somewhere...

We are tired...it's 11:30pm, but our little fighter is almost asleep and hopefully won't be bothered for awhile...so it's off to try to get some rest too.

Praying to be renewed tomorrow with peace and strength for another day...