We got the final word today and the plan is to admit Camryn on Sunday around 10am and then we would meet with the pediatric surgery team for her central line placement consult. On Monday she will have her central line placed and then start her arsenic treatment that afternoon. If all goes well that will run for 5 days and then we would go home and do the rest of the treatment as an out patient. We are praying for this to work out! As we would love to be home for those 4 weeks.
Camryn is doing well...as well as can be expected for a little one with leukemia cells in her body. As well as a 4 year old with cancer can be I guess...no that's wrong...Camryn is doing what Camryn does best. Fighting...fighting to be well.
Last night as I was removing her bandage from her bone marrow aspiration she was crying and asking me not to hurt her. If that doesn't break a mommy's heart...it nearly crushed mine. After we had finished that ordeal Jason and I talked with Camryn about what is to come. We talked about her juice (blood) making her sick again...that she would need a central line...medicine...and to be in the hospital. Honestly, she took it well and in true Camryn fashion she asked when she gets to come home. She is glad for a line as that means no more pokes with needles for blood draws and IVs...this was welcomed news.
As Jason and I tucked Camryn in she was the sweetest angel...she said to Jason as he kissed her goodnight, "Daddy, I hope you, mommy and Wyatt never get sick like me and you don't get shots, IVs or lines."...tears flowed. Even in the midst of the storm that is raging in her body and in her life she cares for others...truly, she is a gift. A most precious gift.
We thank the Lord richly for this angel in our midst...for teaching us how to gracefully walk through even the darkest night with a hope that again Jesus will make her better.
I heard this song today...never heard it before, but it brought tears to my eyes.
Your baby blues
So full of wonder
Your curly cues
Your contagious smile
And as I watch
You start to grow up
All I can do is hold you tight
Knowing clouds will rage
And storms will race in
But you will be safe in my arms
Rains will pour down
Waves will crash all around
But you will be safe in my arms
Story books full of fairy tales
Of kings and queens and the bluest skies
My heart is torn just in knowing
You'll someday see the truth from lies
Knowing clouds will rage
And storms will race in
But you will be safe in my arms
Rains will pour down
Waves will crash all around
But you will be safe in my arms
Castles they might crumble
Dreams may not come true
But you are never all alone
Because I will always
Always love you
Clouds will rage
And storms will race in
But you will be safe in my arms
Rains will pour down
Waves will crash all around
But you will be safe in my arms
~ Plumb
A few more days at home...a few more tears...a few more smiles...but, most of all a few more days with our precious gift...
Camryn Lee





5 comments:
so sorry, this is not ok!, why ? i hurt for you and i'm sending my love and i'm begging and crying out to God for you!!!
Stopping by from Devon's blog to send strength and healing thoughts to your sweet Camryn. Your family will continue to be in my thoughts and prayers.......
Hi Dana,
I don't know you, but as a mom and as a sister in Christ, I am hurting with you and for you. Two of my kids have been going through trials - one recently diagnosed with OCD and Lyme disease, the other being misunderstood, mistreated etc. And as I remind them, I remind myself that God is good ALL the time and He loves us and He is in control and He is trustworthy and faithful no matter what. It can be so HARD to walk through the valleys, but He is with us and with Camryn and with her sweet mommy. Praying for you as you face this trial. May God grant you peace, strength, comfort and grace. I pray that she will be healed and He will be glorified and that you will sense His abiding presence and abundant love daily! You and yours ARE safe in His arms.
Lori in VA
I am storming the gates of Heaven with prayers (and asking Courtney to gather the angels to watch over you all. Please let me know if there is anything that I can do.
Wishing you God's richest blessings,
Debbie
Your daughter sounds amazing! I have a 4 year old daughter and a 2 year old son... I raise up prayers for your family as your being your fight.
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