sunday afternoons...

Hospital life comes to a slow crawl on the weekends...Saturdays are a little more active, but Sundays well, they are a slow crawl.

Camryn had an okay night...being on pain meds around the clock means she has to sleep with her pulse ox on all the time. Yep, she loves that...not so much. Last night the lead was loose and the alarm kept going off, thankfully once a new lead was on the alarms stopped. The doctors want to make sure her oxygen levels are good since she is on quite a bit of pain meds. After the pulse ox alarms were done we settled in...until Camryn had to go to the bathroom again...then back to bed. I will admit getting her to the bathroom is quite a challenge with one double IV pole, 3 things to unplug, plus unhooking the pulse ox...doing all of that very quickly as the window to get Cam to the bathroom is a small one. She did great...throughout the night, her AM labs showed that she needed platelets and blood. So at about 5am her nurse came in to pre-medicate her for her transfusions...tylenol orally, that was the challenge. Poor Cam is really struggling and the tylenol burned going down her throat...but, like the fighter she is, she did it. After that was done, she was peacefully sleeping and did fine the rest of the night/morning.

The Dr. M and Kenji came in and talked with us about her pain levels, wanting to make sure that she is comfortable. She is on a PCA and has a pain button which she really likes as it gives her a sense of control. And there really isn't much she can control so being able to control some of her pain is helpful. They are going to cut down on some of her fluids so hopefully that will help in the almost every 2 hour bathroom trips. Camryn is doing exactly what is normal at this stage in the process, even though we hate seeing Camryn struggle, it is helpful for us to hear that this is expected. We are not fighting some crazy infection or anything...we are just dealing with the affects of the radiation and chemo. Seriously, that radiation and chemo stuff is crazy rough...it is so hard to think that this is what has to be done. Dr. M said this is the rough week and it likely could get worse as her white count is non-existent...but, he went on to say that due to Wyatt's marrow being so rich he is predicting that maybe in a week we'll see some signs that things are getting better. So, in a week...we are hopeful to see some signs of Wy's juice taking over...and killing those leukemia cells.

As we keep telling Cam...we are going to get her better...

We gave Camryn her daily bath and changed her line...got through that well and then we did her mouth care. Mouth care is a daily struggle as we need to do it at least 3 times a day and with the throat/mouth pain Cam has it hurts. But, she is doing it even though she hates every bit of it.

Right now she's awake and watching some tv...doesn't much feel like doing too much. We played a couple games last night and colored, but that only lasts so long...she is just tired. I don't blame her, her body is fighting hard. And we really just have to get her through this week...and the week's after. But, we are hopeful once Wy's juice gets to work Cam will feel much better. Work Wy's juice...work.

We are doing okay...Jason and I are both here with Camryn now. And just passing the time...Wyatt is spending the day with Grandma and Papa. Jason will head out later this afternoon and I'm sure he and Wy will have fun watching the Laker game tonight.

It's hard not being together and last night after we video chatted...Camryn was very sad and so was I. I wish we were all at home together...that our divided family life would be over. But, that's not to be...yet.

We still take it day by day...each day that passes we are closer to Wy's juice coming in. So, right now...we just keep waiting and expecting great things.

Our little survivor is fighting with all she's got...

Our little donor is doing really well...

And we are hoping that the Dynamic Duo can do it again...

Even if it is a long week to get there...