Today marks the fourth week Camryn has been in the hospital...one month. Wow. It feels so long and yet so short, but most of the time it feels very long. But we are hopeful that there is less hospital time in front of us...hopeful that this new week brings some steps towards home.
Camryn's white count is at 1.09, it is coming up little by little. As much as we would love to see huge increases; we know that these little increases are good. It's hard to be patient...but again this is not a fast process at all. There was some mix up in the lab today and we never officially got Camryn's ANC...so here's hoping we get some good news tomorrow. Maybe she's moved off of 100? Hoping!!!
The changes this week is the weaning of the IV nutrition which is wonderful. As Camryn eats more it is nice to know that she is making progress towards recovery and home. In other changes the doctors have changed Camryn's cyclosporin meds to twice a day instead of the continual 24 hours. This is a step in recovery as Dr.S said today...Camryn is making great progress so this is the first step. She will be on twice a day for a few days and then as the levels are checked the next step would be oral meds...and you know what oral meds means?
Home isn't too far away...
Now we are not going home anytime too soon...but, to see steps being made to begin the process is very encouraging. We are thankful, incredibly thankful that Camryn is doing so well.
Our prayer is that she continues too...that her white count continues to come up and as most of the people caring for Camryn say, "at one point it will just take off." Our prayer is that as it takes off, the GVH stays under control. For now we are liking seeing the red face, red ears...and hopeful to see some red palms and red soles on her feet.
As we were reminded today that as long as our journey is and has been we are not just beginning...as we saw a family today, who is just beginning this journey. My heart aches for them, knowing all too well that there are some deep hurts that will come...praying that the Lord meets their family as He has met us.
Jason and I went to lunch and talked about Camryn and Wyatt and just reflected on the joy that they are. We would not trade the moments with them...do we wish leukemia had never become part of our lives, absolutely. But, we can't change it...we learn to live with it. We learn to rely on Jesus...on His love for us, His plan for us...
So it is a new week...starting our fifth week, hopeful this week holds good things for Camryn. Hopeful that in the midst of it all, we continue to find our comfort, peace and hope in Jesus. Because He is the hope...
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4 comments:
Glad to hear you are making more progress. I will be praying that the numbers start taking off. I am praying that home will come soon. I know how much healing it is just to be in your own surroundings.
Praying for those numbers, and for peace and grace for us all.
Cxx
Oh dear lord, Bless your family. You have wonderful children. I am new to your blog but I just want to say I will pray for you all..
Blessings from New York..
Stacey
praying for HUGE numbers this week...
give my little niecey a hug and kiss from me! miss her...
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