It's Tuesday...the fourth Tuesday of the month to be exact, Camryn's clinic appointment.
We got up bright and early which around here does not happen all too often during the summer months...we enjoy sleeping in around here and no one more so than Camryn, she is a sleeper! But, today was an early morning and she was cranky! She did not want to do and wanted nothing to do with getting dressed, going to clinic, but most of all she wanted nothing to do with getting a shot (that's what she calls a blood draw). So, it was a rough start.
Wyatt was up early too as we were dropping him off at my parent's house so he did not have to go to clinic today. Wyatt woke up sweet and cuddly like he always does...this boy just melts my heart in the mornings.
As we were driving over to my parents Camryn was crying about getting a shot and having to go to the doctor...no one blames her for the tears, but we were all trying to be encouraging. Then Wyatt said it...the sweetest words ever...
"Just be brave Camryn...you'll be okay and home with me soon."
And a tear welled up in my eye.
Be Brave.
Camryn got to clinic and was great...so talkative and just a delight. Her doctors concluded that she looked amazing and just so wonderful! We never tire of hearing how great Camryn looks, it's a treat! They decided to start the wean of Camryn's tacrolimus...remember when I said it would be a slow wean, I wasn't lying. From .60mls to .55mls...seriously, slow. But, it's best for Camryn allowing her body to slowly wean to keep any GVH from rushing in and raging throughout her body. Baby steps...slow and steady...Cam will get there.
We also said good-bye to Dr.A today...Dr.A has been a gift to us through Camryn's second journey through transplant. We cherish Dr.A, Camryn's doctor, but at times more like a friend. He has believed when we doubted and challenged us to hope and believe. He has loved Camryn well...and He is truly the most incredible doctor. No words can properly thank Dr.A for everything he has done and meant to us...
We love you Dr.A...always.
After the good-byes we headed to the lab...sigh. The tough part was coming and as soon as we headed back Camryn's mood changed. Thankfully we got one of the best lab techs there and it was quick...oh there were tears and wails, but Camryn survived and was totally fine afterwards.
She was brave.
Brave: possessing or displaying courage; able to face and deal with danger or fear without flinching
Over and over again Camryn has faced things that no child ever should or even an adult for that matter. Sometimes I am amazed when I consider the bravery she has mustered...pokes, x-rays, lines, medicines, ct scans, chemotherapy, radiation, procedures, the list goes on. She has done it, not because she is special (although I think she is just the best). She has done it with grace from her Heavenly Father. There is no other explanation.
She is brave...she will be brave, because her Father loves her so.
After all the little one encouraging her to be brave is one of the greatest gifts her Father will ever give her.
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1 comment:
Yeah for a decrease in the meds, even if ever so slow! Your whole family is very brave in my mind.
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