soon, maybe...

Yesterday morning I felt as though I worked in a medical office answering phones, scheduling appointments and refilling prescriptions...but instead of it being for a various people it was all for Camryn. Camryn's doctors met to discuss possible alternatives in dealing with her blood clot as well as the possibility of removing her line last Monday. They put the paperwork through to get a referral for a cardiology consult as well as a surgical consult for her line removal. True to Camryn's new insurance group form the authorizations were through in less than a week, so the offices were calling to schedule appointments.

First the cardiologist...we will go next Wednesday to get a consult for her blood clot. Talk with the cardiologist and see if there is an different option than Lovenox, maybe an oral medication, ask some questions regarding the future of the treatment; as quite honestly I think most of the doctors thought this would not be a long-term thing and it's been over a year now. We are very hopeful that something will come of this and change...really ready to end the shots and move on to something else. We completely understand the issue with the clot as it's placement is not a good one, so we get that something needs to be done...we're just hopeful that the something does not involve nightly shots.

Second the surgeon...we will go next Tuesday to meet with the surgeon who put Camryn's line in to discuss taking Camryn's line out. Of course this is a bit nerve-racking as the whole discussion centers on anesthesia, surgery, and losing the access point Camryn does have. But, we are ready...Camryn is ready. Her first central line she had 8 months well, now we are moving on 18 months and the poor girl is ready to be done. Granted she is scared to death of blood draws without it, but at some point this is what is next...hard, but exciting too. The surgery is an out-patient surgery so no overnight stays or anything and the recovery is pretty easy as well. We are hopeful that the surgeon says it's a go and we can schedule surgery in a timely manner for Camryn...she does so much better when things move quickly.

Third the pharmacies...Camryn's medications have not changed of late and therefore that means that her extensive blood testing on her immune system has yet to happen. Which basically means that school in the fall is highly unlikely...sigh. But we know that what is best for Camryn far outweighs anything else. Of course we'd love to get the ball rolling faster, but we also more than that LOVE our little girl healthy! Hopefully at her appointment later this month they discussion will begin on the weaning of medication process...long process, but again what needs to happen.

So the ball is rolling slowly, but rolling nonetheless...

Please be praying for Camryn as she is very nervous about the line removal and all that comes with that...and of course meeting new doctors is always a bit scary for her. We will keep you posted, but thank you for your continued prayers for our little survivor...she's amazing, simply amazing.