Friday, September 4, 2009

gvh...sweet things

Today it was confirmed that the rash on Camryn's tummy and back is GVH (graft vs. host)...so steriods were prescribed and thus begins our steroid journey. As we were reminded today a little GVH is okay...in fact it's good in little doses. So we are thankful...means that Wyatt's marrow is still searching and destroying all things that should not be in Camryn's system. The plan is to keep it under control with steroids and not let it get too out of control.

Really it is a good sign that Camryn is having some GVH, means that the graft is still setting up shop and doing its job...so we'll celebrate that. And we'll pray that the Lord continues to hold Cam is His hands throughout this process.

We'll keep you posted, but for now we'll start our steroids and hope that the side effects aren't too bad.

After clinic we headed up to Village to have a very special time...Mrs.L who most likely would have been Camryn's Kindergarten teacher is a dear friend of our family, she's followed Camryn's journey from the very beginning made time to meet Camryn. One of Camryn's desires was to meet Mrs.L even though she was not going to be in her class this year. I talked with Mrs.L and we arranged a time for Camryn to come and meet her lie the other children get to do...today was our time. Mrs.L had a little packet of goodies waiting for Camryn and let me say that it made Camryn feel so incredibly special...just amazing.

Camryn has not stopped looking at the goodies, working on coloring pages, practicing her letters...all of it! She is just LOVING it!

I am speechless by Mrs.L's gracious and kind heart...she is truly a very special lady and we are so thankful for her care of our dear little girl even if she isn't officially in her class...Thank you Mrs.L!

This weekend marks our last weekend before the madness of school begins again...we are going to do a lot of just hanging out which is good. Tomorrow college football really begins and those of you that know me well know that this is my "most wonderful time of the year"...I love it!

The Lord met us today in very real ways and we are so thankful...He never ceases to remind me that in the midst of the hurt and heartache that Camryn feels that He loves her so...that she is His. And He knows what leukemia has taken from her and in His time He will redeem and restore it to her...

For He will meet her little heart in amazing ways and He will continue to heal her physically as well as emotionally one moment at a time.

After all she is His sweet girl...

1 comment:

Unknown said...

I can't tell you how much it meant to me to be able to touch her precious life!!! It is truly a privilege. Love your family and I marvel at all that our loving God is doing in Camryn's life. What miracles!!!!