Saturday, April 30, 2011

easter...

Our Easter Sunday...

The boy ready to go Easter egg huntin'...we were at my sister's house, which just might be the best house ever to hide Easter eggs at.



This little Miss takes hiding and finding Easter eggs very seriously...thank goodness for the big cousins Caleb, Josh, and Makenna for playing along and always be so much fun!



The kids' Easter baskets were Bambi & Thumper...don't you think Jason looks great holding the Bambi basket? Heehee. These boys were competitive, they had to find the most eggs...



Love this pic...sometimes I am just amazed at the story written between these two. Easter always brings a wave of emotions. They are such individuals with uniqueness about them, and yet I cannot separate these two...



Is this not the cutest group? We had lots of fun at Jason's parents house...eggs hunting, playing, eating, and being together. These little faces bring much joy to my heart and I am so thankful for them...



Just a fave...



Wy and Sweet P...they are September babies, I love how Wyatt loves P...he is so fond of this little one.



Cam and Ry...these two girls are hilarious, sweet, fun, and all the things that make their friendship just so special. I love that Cam has Ry to be her cousin and her friend...Ry has been a huge blessing throughout Cam's journey, so thankful.



The four of us...



Hope you all had a blessed Easter...we certainly did. Thankful for the many blessings that the Lord has continually lavished on us even in the midst of the storm...thankful that He loves us and He knows. He knows the hurt of grief, the sorrow, the pain...and He knows the joy, the peace, the hope...

Hope that there is more...oh so much more.

Friday, April 29, 2011

easter photo shoot...

Our Easter plans this year were a little different...we are attending church on Saturday nights so that Camryn and Wyatt can participate in the children's ministry programs. In honor of Easter we attended the Resurrection Saturday service and the kids got all dolled up on Saturday evening instead of Sunday...













Seriously how cute are these two? Love them...

We had a very wonderful Easter Saturday night...it was cute as Camryn and I were talking about Easter and Jesus dying she was asking about Easter baskets and such; and she says, "Mom it sure is a long wait 'til Easter."

And it was. I thought about what she said and simply my mind drifted to 11 men who had gathered in a room grieving, mourning, hoping, and believing...waiting for Easter. Although they did not know Easter was coming they thought it was finished.

How glorious Easter is knowing that Good Friday is not the end of the story...how hopeful, how precious, how redeeming...

Monday, April 25, 2011

take me out to the ballgame...

There's a little boy in our house who loves the Dodgers...



Wyatt loves baseball...he has a Dodger schedule and frequently checks it to see if a game is on. And if a game is on he has to know who is winning, who is hitting, and all sorts of other things. He knows the Dodgers line-up by heart...in fact today when we were playing baseball he went through the batting order and instructed his sister who she was pretending to be. Of course he was Either, he favorite...all about the lefties.



These two boys love baseball...and it is hilarious to listen to them *argue* in the drive-way about how to hit the ball, how to pitch the ball, to watch the ball. Yep, I'm sure these two will have many baseball moments in their future.



We were given Dodger tickets by our friend D, many thanks! He has great seats and we had tons of fun on Fernando Venezuela night. Notice our blanket? We all got Fernando blankets...Camryn was impressed by this Fernando person. I told her that he pitched for the Dodgers when I was her age...I don't think she quite believed me. We had tons of fun eating, watching, and of course rooting for the Dodgers.



We love LA...and I love these three and our family's love of America's favorite past-time. Yep, we love Dodger baseball.

a long day...

Last Tuesday Camryn and I headed to UCLA; she had a clinic appointment and a therapy appointment. I thought I had been super smart and scheduled them for the same day...in theory that would have been a great idea. In reality it made for a very long day.

We got to clinic super early...we saw Dr.J first, we have literally watched Dr.J grow up if you will. She is a third year fellow and had the unfortunate opportunity to first meet us on the day of Camryn's relapse. Dr.J has been and will continue to be a great friend to us, we have enjoyed her presence and her love for Camryn...it is a gift. Dr.J got caught up on everything and said that Dr.M would be in to see us in a few minutes.

As we talked it was nice to again have some reassurance about how well Camryn is doing in spite of the steroids and such. Yes, Camryn is still on steroids. Her dose has not been changed as of yet...she is showing signs of some acute and chronic GVHD so the doctors want to get her numbers right where they should be.

Dr.M came in and confirmed that there would be no change in medicines this week...we are on a weekly blood draw basis now. Funny, that we really are doing well with everything, but Camryn is getting poke every week. Ironic. Dr.M said her numbers were much improved and stabilizing which was great news. He said he was so happy to see her numbers doing so well. It really is a tension to hear "she is doing really well" and yet our counter is still full of medicine.

All in all it was a good appointment...Camryn is doing well far as leukemia and cancer. Her nemesis now is that which is making her well. Ironic, but a gift.

After we got done at clinic we went to the lab and got blood drawn...Cam's a trooper and doing so well with this every week. She hates it, she fights it, but she does it. That has been her battle cry throughout this whole thing...

I don't want to, but I will.

We got done and headed up to the UCLA book store...we needed to do something to pass the time. We shopped around, got a snack, people watched, looked around UCLA a bit. So funny growing up a Trojan fan and yet so comfortable in the Bruin world. We sat and chatted a bit, read a book, called Daddy. After while she was tired so we headed back towards the hospital. We came upon some little fountains...

Cam said, "Mom remember these fountains? This is where I came when I finally got to go home...Look Mom the sign says "Garden of Peace"...these are nice fountains, I like them."

And I remembered...a frail, bald, fighting little girl who so badly just wanted to go home...

And now she is a curly hair, steroid puffy, brave little girl who so badly just wants to be well...

Some things only slightly change.

We walked to lunch and enjoyed a Mommy - Daughter date. It was such fun, but both of us were tired, weary...just something about juggling UCLA life that does that to us.

Finally we headed to therapy...it went well, but Camryn was tired. Thankfully, her therapist was super understanding and was very good to her. Cam had to have a new hand brace made for night-time so that was pretty easy. She is still making great progress in therapy and we are super pleased.

Finally it was time to head home...after a total of six hours we were home. It was a long day...

And sometimes long days aren't good for my heart. Lately I have felt completely overwhelmed, pretty much since Camryn went back on steroids. It has been a battle between head and heart. Lots of things creep in to bother me, things that on any other day wouldn't even catch my eye. But, I was tired...I am tired.

Not physically tired, but emotionally weary...there just never seems to be a moment when we can escape the realities. And sometimes I would like to.

But, this is what it is. I was thankful for Easter...the hope it brings was a welcomed refreshment for my heart and mind. Remembering and realizing that HE is alive, HE knows, and HE cares...

After a long day on Tuesday I was reminded that no matter where the journey leads that Jesus is carrying us through...

Because HE loves us.

Wednesday, April 20, 2011

the golf trip...

Camryn is an aspiring golfer, really she is. She has wanted to "play" golf for quite awhile now. Her daddy bought her a set of kids clubs, complete with a bag and everything...so she had all the right stuff to golf, just hadn't had the big opportunity. We are excited to let her pursue golf as it is a sport that she can physically play now, some of her muscle tone has been lost and it is difficult for her to do some things; but golf we thought it would be perfect.

Well, Jason's dad is an avid golfer, would golf everyday all day if he could...so the golf bug is big in the Mikels family. Both Jason and his brother are golfers and would love to go more than they do, but alas they had jobs that don't have such a flexible schedule. :) Anyways, for Camryn's birthday she asked for a golf day with her Grandpa...cutest thing ever.

When she opened her card from Jason's parents there it was a gift certificate for a trip to the driving range with her Grandpa and Grandma too!

We arrange the day Grandma would pick Camryn up and then they would head to the club to meet Grandpa get some lunch and then head to the driving range. Camryn was nervous, she did not know what to expect. Plus, we had to lay out her "golf" outfit the night before to make sure it was perfect. Monday came, and off she went on her golf adventure....

Cute little golfer...seriously I think she could be on the LPGA, what do you think?



Getting the lesson in how to hold the club correctly.



Taking a swing...



Grandpa was proud of how well Camryn listening and followed directions..."she did what I told her to." Good Job Cam!



I love this picture...classic golf shot, but even better her Grandpa looking on with pride. Love this...


**if you look real close the yellow balls are the ones that Camryn hit. yes, she actually hit balls and as her Daddy said, "it's a good sign that they are all straight out in front of her!"**

Now to the putting green...




She might have just sunk that putt...



More lessons from Grandpa...



The two golfers...Grandpa & Camryn



And there are no pictures of Grandma, because she was behind the camera...but, this ice cream stop at the end of the day is a Camryn & Grandma tradition. :)



Camryn had a very special day with two very special people. One of the greatest blessings in my opinion is that Camryn and Wyatt both have their grandparents close by to be with, learn from, and for their grandparents to leave a legacy in. Some of my dearest memories of childhood are with my grandparents and I am so thankful that Camryn & Wyatt are creating memories that will last forever with our parents. Truly a gift.

Plus, a little bit of the Mikels family tradition of golfing was passed down from Great-Grandpa, Grandpa, Daddy, and now Camryn.

Next up...the lefty Wyatt.

Monday, April 18, 2011

cowgirl birthday...

Howdy...Camryn turned 7 and what better way to celebrate the Lucky 7 than a cowgirl party.



We do love us a party in these parts...and it is especially great when you can borrow lots of fun cowboy stuff from your mom and sister. I have to say that it's so fun to plan the parties for the kids, it's one of my favorite things to do with my kids...plan their parties.



Here's our Mikels wild bunch...



And I was proud to remember to snap this picture of the Wilson wild bunch of cousins...often times we get pictures of the kids with their cousins their age, but the older cousins get missed. Not today...love this picture!



Here's the Wild Bunch...eatin' and enjoyin' their day. We created $ sign loot bags, which were lots of fun, thanks mom for sewing them. Camryn loved having her friends here...



The Birthday Girl and the banner...I made the banner, it took awhile; but I was pretty stinkin' proud of myself. Don't you love it when the picture in your mind turns out...that is this banner.



Woody & Jessie (a.k.a. Wy & E)...and as we say, "totally going to use that picture in your wedding video". wink, wink.



And what cowgirl party would not be complete without a cowboy named...Wyatt. To be honest always wanted to do a cowboy party for our boy named Wyatt, such a cowboy name. Maybe someday, but for today it was his big sister's day and he loved it. Well, most of it except the country "gurl" music we played...yes, he isn't a big fan of Taylor Swift, Sugarland, and Carrie Underwood. :)



We had lots of fun...we even rented hay bales, had bottled root beer, and lots of fun! Camryn said when she went to bed..."that was the best birthday ever, thanks Mom & Dad."

And that was enough for me.

Tuesday, April 12, 2011

seven-years-old...

How did it come to be that our sweet baby girl turned seven?!

Camryn Lee,

Sweet girl we cannot believe you are seven. It was just yesterday we were meeting a sweet bundle of joy and loving you completely. We loved you from the moment we laid eyes on you...you were precious, still are. You have encountered a life that many will never know, you have fought hard, you have battled inside yourself, you have overcome odds that quite frankly had you beat. And now...

You are in first grade and doing great. Loving learning, playing, and being creative. We are constantly amazed at your creativity, your drawing and imagination is amazing. You are amazing...simply amazing.

Even tonight when I came into your room to tuck you in I found myself just staring...staring at the miracle of you. The miracle that God has given to us...the journey we would never have chosen, yet it has made you into a strong, brave, and awesome little girl. We smile when we see your face, even when it is puffy like now...you are beautiful, simply beautiful. Your eyes smile, your big blue eyes...they have captured so many memories and moments that you carry with you. You are older and wiser beyond your years...and now you are seven.

We are proud of you...incredibly proud. There were days when we did not know if we would get this day...and yet you are here and it is never taken for granted.

We love you Camryn...we love you up to the sky, past the mountains, over the ocean, and as far as you can see...and we thank you. Thank you for teaching us what it is to love you well and carry you the best we can...thank you for being the most fabulous seven-year-old ever.

LOVE you,
Daddy & Mommy


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In other news...I could not wait to share...

We got the results of the chromosomal check on Camryn's blood. This was the test Dr.M ordered to rule out a relapse. The results showed that Camryn's blood was male showing a Y chromosome which means the cells are DONOR cells. All that to say, that Wyatt's marrow is working and healing Camryn. And the steroid set back, not a relapse, but rather a flare up of GVH...Praising the Lord!

Tears filled my eyes...imagine hearing your son's bone marrow is at work deep inside his sister. It is a gift, a miracle in our midst that we will never, ever even for a second take for granted.

And from Wyatt...that's a pretty awesome birthday gift. Oh and the Bambi figures he got Camryn were cool too. :)

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And I will post pictures soon of Camryn's birthday party...